Session E
CONFERENCE DAY 2 - FRIDAY, JUNE 6TH 2008 (11:15-12:15)
Concurrent Podium Presentations (Select 1 of 9):
1E The Cancer Survivor's Tool Kit (30961)
Ms. Ronnie L. Kaye - UCLA Medical School Faculty (USA)
While women are very likely to be informed about treatment choices, surgical options and other matters of a medical nature, most do not receive instructions and the guidance for moving through this challenging time in a way that will keep them afloat emotionally.
Women with cancer need communication skills that allow them to be heard, they need to shape attitudes that help them live well with uncertainty and overcome low self-esteem, they need an understanding and appreciation of the mind/body connection so that they can become more active in their own recovery, and they need ways to access their own personal power. The practical tools contained in the cancer survivor's tool kit can provide women with useful strategies for the journey to recovery.
2E Experiences of Men with Breast Cancer: a Qualitative Study
Ms. Edith Pituskin - Cross Cancer Institute (Canada)
Recent reports indicate that male breast cancer rates re increasing in North America. While there have been numerous large-scale studies examining women's experiences with breast cancer, to date there have been no North American studies examining what a man experiences with a breast cancer diagnosis. The objective of this qualitative study was to describe the experiences of a sample of Canadian men diagnosed with breast cancer. Method employed: Exporatory qualitative approach via interview.
3E Lymphedema: Take Control (30197)
Ms. Marjorie L. Morrison - Breast Cancer Action (Canada)
Results of a ‘Lymphedema Needs Assessment Questionnaire' will be presented. It will include the critical role of effective lymphedema education in prevention, or management efforts; the role that lymphedema print materials and support documentation play for breast cancer organizations; the value of introducing a "train-the-trainer" perspective; and the adverse affects of lymphedema secondary to breast cancer on survivors and their quality of life.
An interactive Question and Answer will follow the presentation, allowing for further elaboration on areas of interest to conference participants.
4E Finding the Evidence: A Search for Unbiased Literature (30721)
Ms. Donna Champagne - Canadian Agency for Drugs and Technologies in Health & Ms. Margarete Schulz - Government of Manitoba, Dept of Health & Healthy Living (Canada)
This is an interactive session providing information on where and how to seek unbiased information from The Canadian Agency for Drugs and Technologies in Health (CADTH), to support health technology decisions regarding policy, purchasing, service management and clinical practice. It is also a forum for participants to respond with their own comments or questions regarding challenges with technology decisions and whether this method of research is appropriate for their needs.
The session will highlight a Manitoba example, where the CADTH's Health Technology Inquire Service (HTIS) was used regarding information on a Canadian-based analysis on breast screening in higher risk females using MRI, compared to regular film mammography. CADTH methods in assessing technological information will be of particular interest to funders, researchers, policy makers and advocates.
5E Delays in Treatment: How Much Wait is "Too Much" Wait? (30765)
Dr. Donna Turner - CancerCare Manitoba (Canada)
The study being presented looks at treatment delays as part of the ‘patterns of care' analysis. It addresses issues around the effect of health system delay in terms of outcomes, especially survival. This was augmented with data acquired directly from patients about their experiences waiting for breast cancer surgery, in order to understand which parts of the overall wait were most difficult. Combining these two perspectives will allow solutions pertaining to both the length and quality of patient's waits.
The audience will be asked to imagine that they are population health researchers and to identify what questions and data they might want to ask about breast cancer treatment wait times and outcomes. Thus this will be a teaching, as well an information sharing session.
6E Journeying with Women Undergoing Breast Cancer Treatment (30843)
Ms. Evelyn Leferink - WRHA Breast Health Centre (Canada)
‘Life is not a destination, it is a journey.' Some women and men come upon the unexpected event of breast cancer diagnosis during their journey. The news of the diagnosis is a devastating blow, followed by an intense time of emotional distress, decision making and choices about treatment.
This presentation will focus on the development, implementation and evaluation of an innovative patient teaching initiative. The goals are to prepare patients and their families for hospitalization; enhance their knowledge in self-care; improve their at-home recovery; and provide them with an overview of their treatment and care.
The audience will be involved in an interactive exchange to identify some of the barriers to patient learning, teaching and sharing creative approaches, and methods of teaching.
7E Occupational Therapy Fatigue and Pain Clinic (29123)
Ms. Susan Nesbitt et al.- University of Manitoba (Canada)
Fatigue and pain when moderate to severe, negatively affect a patient's ability and desire to participate in self-care, work inside the home, work outside the home, and leisure activities. Despite having problems with daily activities, outpatients with cancer seldom are referred to occupational therapy. Therefore, a fieldwork placement for occupational therapy students was initiated.
This presentation will explain the fieldwork placement, including the students' observations and interpretations of the gaps in occupational therapy, their observations of what worked well and what needed to be improved, their plans for improving their knowledge and skills, and a report describing demographics and strengths and challenges in this type of fieldwork placement. The presentation will provide participants with an experiential occupational therapy session. It will relate to pain and fatigue management, and energy conservation, sleep habits, exercise, deep breathing, and nutrition will be addressed.
8E Promoting Early Detection of Breast Cancer in India (28882) / Reaching the Hard to Find (28706)
Ms. Neeta More & Ms. K. Dustakar - Cancer Patients Aid Association (India)
Promoting Early Detection of Breast Cancer in India: The Cancer Patients Aid Association's (CPAA) developed and implemented a strategy for providing the means for early detection of cancer in an urban population in India.
An early detection strategy was especially difficult in India, given the suspicions, fears, myths and misapprehensions prevalent in Indian society. Healthy individuals, especially women, would not come forward for screening. But, by understanding and adapting local mores and norms, CPAA enlisted the assistance of respected role models and leaders to convince the general population. The session will highlight the introduction of free clinics and workplace camps that produced remarkable results between 1987 and 2007.Reaching the Hard to Find: By 2020 breast cancer could reach epidemic proportions in countries least capable of handling it. In this inter-active workshop, Dr. Shubha will present major challenges recently addressed by India, including lack of information and education; variety of languages, cultures and religions; a conservative society; the low priority given for women; and quality of life issues. How these problems were tackled and solutions provided will be discussed.The workshop will involve some audience participation through a questionnaire, to be completed prior to Dr. Shubha's presentation. Following her presentation, responses to the questionnaire will be discussed and participants will be asked to revisit their responses in the light of what they have learned from Dr. Shubha's presentation.9E Early Diagnosis and Treatment: Intervention for Lymphedema (31309)
Dr. Charles L. McGarvey - CLM Consulting Services LLC (USA)Findings of a multi-institutional study indicate that pre-operative assessment, prospective surveillance and early intervention may prevent the onset of irreversible Lymphedeam. Participants will also discover how a sleeve garment on affected limbs can serve as a prevention tool in the treatment of lymphedema. Patients, researchers and medical personnel have explored how this cost- effective preventive-model compares with a traditional impairment-based model.